Lucie Jurek : "From “caregiver” to “therapist”: parental experience of parent-mediated intervention for children with ASD. A qualitative evidence synthesis"
Whilst the effectiveness of parent-mediated interventions (PMI) in the field of Autism Spectrum Disorder (ASD) is well documented, information on the experience of parents involved in PMI is limited. In this talk, a systematic qualitative evidence synthesis to explore the experience of PMI in parents of children with ASD will be presented. To synthetised the available qualitative litterature on parental experience of PMI, a systematic review methodology was followed and combined with a metaggregation method. Twenty-three studies were synthetized representing 345 participants. We found 34 categories that were summarized in four synthetized themes: barriers to implementation and logistical issues, feeling overwhelmed and stressed (a need for support), facilitators of implementation, and empowerment in the parent and improvement in the child. These results will be discussed alongside with qualitative evidence synthesis methods.