Desjardin R, Préau M
Sante Publique. 2026;38(1):35-45.
PMID: 42547403
ABSTRACT
Introduction : With the growing expansion of participatory approaches in health, an increasing number of training initiatives have been developed to support these practices (Tourette-Turgis et al., 2019). However, these initiatives remain heterogeneous in their formats, objectives, and target audiences, reflecting a lack of consensus on what constitutes participatory approaches in practice (Paulo et al., 2023).
Purpose of the research : This study aims to explore French-speaking training programs that foster collaboration among researchers, health professionals, and citizens. It focuses in particular on the underlying processes of acculturation, especially the ways in which citizens are introduced to research norms and the functioning of the healthcare system. Drawing on a review of grey literature and scientific studies on the topic, the study identified a wide range of training initiatives designed to promote the involvement of diverse groups in health research projects.
Results : These programs most commonly seek to equip citizens and patients with the skills needed to participate in collaborative research. They vary according to the type of partnership (clinical, project, or educational) and the expected level of engagement, ranging from online modules to professional degree programs. Few initiatives, however, include specific training for health professionals.
Conclusions : Training represents a key lever for supporting collaboration by fostering mutual understanding, adjustment, and recognition. However the imbalance in training opportunities raises questions about power relations, the professionalization of patients, and the epistemological limits of certain participatory approaches, highlighting critical challenges for the co-construction of knowledge in health.