Anne-Marie Schott – Julie Haesebaert – Marie Viprey
Funding: PREPS - IRESP
Project Leader: GRePS - Hospices Civils de Lyon
Our research work, conducted using a mixed methods approach, has made it possible to identify the points of failure in patient pathways, and the complex needs of patients and their caregivers when returning home, both in terms of treatment compliance, and in terms of social participation and quality of life. Based on these results, we developed the NAVISTROKE project, entitled "Transition program for stroke patients, combining monitoring by a 'navigator' (case-manager) and access to an online information and exchange platform, aiming to improve patients'/caregivers' access to reliable, simple medical and social information that meet their needs".
The co-construction phase of the intervention is carried out with professionals, stroke patients and caregivers, following a “user-centered design” approach.
The impact of the program on patients' participation, patients' quality of life, and the performance of care and prevention pathways will be evaluated in a randomized controlled trial using sequential mixed methods according to a quantitative-qualitative explanatory scheme. This project is based on scientific methods of co-construction, integrating the respective experiences of patients/caregivers and professionals and evidence from the literature, according to the EBM triptych. In addition to evaluating the effectiveness of the intervention on the state of health, a qualitative and quantitative evaluative component of the implementation processes will integrate the empowerment and experience of patients, the evaluation of acceptability by professionals and the impact on their practices, and the evaluation of the integration into the organization of care of this new intervention.
Life after stroke, quality of life, caregivers, access to information
Publications :
Illness beliefs and emotional responses in mildly disabled stroke survivors: A qualitative study.
